Initially her doctor thought it was a blocked milk duct, but since it didn't aspirate easily, her doctor sent a sample to be biopsied. On carbo gem and keytruda and will have scans after the 6th cycle. The term triple-negative breast cancer refers to the fact that the cancer cells don’t have estrogen or progesterone receptors and also don’t make too much of the protein called HER2. Then get up and start fighting for your life, rather than to worry. Although every woman's diagnosis and journey is different, there are some things that we all share. A credible source for triple negative breast cancer information, helpful resources and a caring community for TNBC patients and their families. Instead of trying on wedding dresses, my life suddenly revolved around doctor's appointments, scans, multiple hospital visits and people praying for me. I'm glad to say there was a happy ending - I was able to conceive naturally five years after my treatment had finished and it only took one month of trying. Ask all the questions you need. Order Advocacy Connector Cards She was diagnosed with triple negative breast cancer in 2010 at the age of 29. The sheer amount of mental hurdles that we face can drag us down at any stage of the journey. Today, I want to share my story and five other stories from women who are long term triple negative breast cancer survivors. Don't be intimidated by your doctor, feel silly, or awkward. A week later, I was diagnosed with invasive ductal carcinoma, and a type known as triple-negative breast cancer, which is a less common type of breast cancer and is often diagnosed in younger women … ORDER GUIDES. “Early detection is so crucial, I consider myself fortunate that I found this in … (The cells test "negative" on all 3 tests.) Luckily the bone scan showed nothing and I was still NED. We're not always active in support groups because we're out living our life.". I was last. Today Hilary spends as much time as possible with her husband and two boys age 5 and 10. I wasn't going to survive breast cancer and be diagnosed with some other disease at a later stage. My site provides information and inspirational stories in reference to the disease of TNBC. Deciding on Breast Reconstruction? "Living life is essential - spend time with supportive friends and family, engage in the activities you enjoy and do something you've always wanted to do. She was 65 when she was diagnosed with Stage 3 TNBC in 2009. And I share those same feelings of dread about chemotherapy affecting our fertility. "I have days that I feel 20 years older - low energy, arthritis but I try not to give in to it. Her medical team went in for another round of surgery, but the second attempt to get clear margins also failed. Jade Richards also had some setbacks during treatment but she was able to remain optimistic through out. It was the one fact that I could cling to that kept me going when things were tough. She was having difficulty breastfeeding her baby when she noticed a lump. That was my "AHA" moment. Marilyn opted for a double mastectomy with no reconstruction and the pathology  revealed a 5.5cm tumour in her breast along with 1 lymph node involvement. Having a diagnosis of breast cancer woke me up to the fact that I needed to invest more time and resources into my health. I’m just glad it never returned after all these years, as I feel like a sitting duck...". I was diagnosed with triple negative breast cancer in November 2013. After 10 years, overall survival rates were: 84% for women with lymph node pCR 57% for women without lymph node pCR; Recurrence-free survival rates were: 3. It's true what they say that the journey is just as important as the destination. After a couple of episodes of false alarms, I began trusting that my body was ok. Advertise & Update Listings Because I know that the stronger I am, the stronger they will be. She works full time as a social worker and travels as much as possible. I guess I just had faith that I was in good hands and would be okay.". Joan Lunden. They've also kindly and selflessly shared their words of wisdom along with their pathology, treatment regimes and outcome. The two failed attempts was due to the cancer growing so quickly so her doctors decided on chemotherapy right away. One good web site to look into is "Positives about Negative". They're amazing and understand your situation. Even though every woman's journey is different and unique, there are some things that we as survivors all share. Here are Hilary's tips for managing treatment and taking care of young kids... "Ask for help when needed. A number of factors increase a womans ris… Her breast tissue was clear. triple-negative breast cancer (HER2-negative, estrogen-receptor-negative, and progesterone-receptor-negative) cancers that were higher-grade; These characteristics make a cancer more aggressive. From Pro-Cancer to Anti-Cancer: The Lifestyle Changes I Made After My Cancer Diagnosis, How to Get Over the Shock & Overwhelm of a Cancer Diagnosis, How to Take Charge and Build Unshakable Inner Strength After a Cancer Diagnosis. The survivors featured here are people who have agreed to be interviewed by Patient Resource. It's a huge struggle getting through breast cancer treatment, and for many women that challenge extends beyond the physical. Find support, and if there isn't one you're not alone - try online support groups. Just let that sink in. Getting a second opinion doesn't mean that you need to switch doctors. He made me promise to him in the beginning that I was going to be a "happy cancer patient". Linda provides reassurance since she shares her own survivor story. Triple negative refers to breast cancer that is estrogen receptor negative (ER-), progesterone receptor negative (ER-), and HER2/neu negative (HER2-). My journey with breast cancer started when I felt a huge lump on my breast when I was showering one night. Scherri had a previous history of cysts so her doctor wasn't too worried about the lump, until it grew to the size of a golf ball. Only the most beautiful, accomplished, desirable and spectacular women get breast cancer? The last year I have been through the ringer. ". In 2010, I created a blog website called, Triple Negative Breast Cancer, I Won’t Back Down! Learn more. What he told me made perfect sense and even my breast surgeon said the same thing, but my gut was telling me to dig deeper. Her tumour measured 2.8cm and was positioned up high on her breast. Be specific about asking what you need as often there are people who want to help but don't know what's needed. "My daughter was 11 years old when I was diagnosed and I thought I'd never get to see the day of her wedding. Grade 3 stage 2b. I took a trip to Florida by myself this winter and had an awesome time! I didn't have kids when I was diagnosed. Marilyn Buchheit is approaching her 9th year as a TNBC survivor. She felt the tumour shrinking right away and by the end of chemo, she couldn't feel the lump at all. She started her treatment with neoadjuvant chemotherapy which consisted of 3 rounds of FEC (5-FU, Epirubicin and Cytoxan) and 3 rounds of Docetaxel (Taxotere). The former Good Morning America anchor was diagnosed with triple-negative breast cancer this past June and recently shed her wig for the cover of People magazine. She has lymphedema in her left arm that's managed with physical therapy and compression sleeves. Famous Survivors Have you noticed? Generally, yes, the survivor rate for TNBC is lower than for a similar BC that has positive hormone receptors. In other words, triple negative breast cancer does not express receptors for estrogen or progesterone and does not overexpress HER2. "Take the time to cry and feel sorry for yourself. You see, I tested positive for BRCA1+ despite being of Asian heritage and having no family history of breast cancer. Fast forward 7 years later, I am a long term survivor. "Celebrate even the smallest of milestones like when you're halfway through chemo or a quarter of your radiation treatments. "I do believe every survivor gets scared about this. I asked my consultant and he said I never had the test. Tammy has no family history of cancer and is BRCA-negative. I have a 7 year old and am scared that I won’t be here to see him grow . These survivors share their stories to offer hope to anyone whose life is being affected by a triple-negative breast cancer diagnosis. Go do something for yourself. During the last half of the trip my ribs started hurting badly. She had a double mastectomy despite testing negative for any BRCA1 or BRCA2 mutations. Every year that goes by, my thoughts about a recurrence does diminish, but when you get a pain somewhere, the thought of cancer is in the forefront of my mind." Hilary spends as much as possible with her husband and two boys age 5 10. For anyone who needs to talk … Dec 3, 2012 - more... T be here to see him grow have radiation and decided to go for it in... Docetaxel ) Jade underwent a single mastectomy and pathology tests of the ER, PR and HER2 cancer... The sheer amount of mental hurdles that we desire in our lives cancer ( TNBC ) breast cancer September. Telling you like losing hair, family relationships, and when that was,! Survivors featured here are people who have agreed to be a good Patient and follow `` doctor 's ''. Mastectomy and radiotherapy Veep star was diagnosed, I began trusting that my body was OK the of. 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